A young woman has viralized videos on social networks where she tells her audience about the care and problems she has had to face in her life because she suffers from butterfly skin disease. Most of the videos you upload to your Tik Tok account He uploads videos related to trends, however, he has not neglected to tell in detail all the discomforts he has with the disease.
@micaa_loii2 ouch #eb #butterflyskin #for you #fyp ♬ original sound – Micaa_Loii2
International Butterfly Skin Day
Every October 25, the International Butterfly Skin Day is commemorated with the aim of raising awareness among the population about this pathology known as Epidermolysis Bullosa or Butterfly Skin, which affects 1 or 2 people out of every 50,000 inhabitants.
This international day was born thanks to the initiative of the DEBRA International organization in 2007.
According to the Mayo Clinic, epidermolysis bullosa or butterfly skin is a rare condition that causes blistered and fragile skin. Blisters can appear as a result of small injuries due to heat, friction due to rubbing or scratching.
Epidermolysis bullosa is an inherited disease that usually occurs in infants or young children. There is no cure for epidermolysis bullosa, but mild conditions may improve with age. Treatment focuses on healing the blisters and preventing new ones from forming.
@micaa_loii2♬ original sound – Micaa_Loii2
Mica Loi shows how she lives with her rare disease.
Some of the comments that can be read within the videos of the young woman are of concern about the marks that can sometimes be seen during her dances. She has also shown how fragile her skin is during the time she spends putting on makeup where she has lost parts of her skin.
@micaa_loii2 #for you #new Year #explore ♬ Problemón – Alvaro Diaz & Rauw Alejandro
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