Within the field of health, the only certainty is that knowledge must always be updated. Based on the most recent scientific evidence, sufficient modifications can be made to offer the best possible service. All this comes to light thanks to the publication of the new technical protocol for the care of patients with hemophilia. The goal is for all health professionals to adopt it from now on.
What does the new protocol consist of?
In this case, the General Health Council (CSG) published on its page the update of the Hemophilia Care Technical Protocol with password (PT053). The document details the interventions and treatments associated with pathologies that cause catastrophic expenses, as is the case with this weird illness. The biggest novelty is that treatments for adults are included for the first time, which constitutes progress towards universal coverage.
The protocol works as a basis for the care of people who do not have social security. This includes all those who are attended in the Health Institute for Wellness (INSABI), in National Institutes of Health, and Hospitals of High Specialty, which must indicate the requirements of supplies and necessary medicines based on this new protocol.
In the case of INSABI, it must include in its planning the financing necessary for its implementation and for the effective elimination of age barriers.
The hemophilia It is a low-prevalence disease, but with a high social impact, so it is important that these people have the optimal treatments to achieve a better life expectancy with quality.
“The publication of the protocol is very good news that will benefit people with bleeding disorders because it offers them the latest generation of treatments and expansion of prophylaxis. We acknowledge the CSG, the National Center for Blood Transfusion (CNTS) and all the doctors who participated for all the work they have been doing since 2020 and which is now reflected in this publication. We had the pleasure of collaborating as a Federation through our Medical Council”, said Minerva Cruz, President of the Board of Directors of the Federation of Hemophilia in the Mexican Republic AC
Overview of hemophilia in Mexico
The hemophilia is an inherited bleeding disorder in which the blood does not clot in the usual way because it does not have enough clotting proteins. This condition is considered a rare or low prevalence disease because it is caused by a genetic mutation where the mother is a carrier of the disease and inherits it only to males.
In Mexico, the FHRM has a registry of 5,886 people with hemophilia. Of these, around 33 percent are people without social security who receive care in INSABI-CCINSHAE institutions, and who would be the main beneficiaries of this new protocol.
It is considered a weird illness because it has a prevalence of less than five people affected per 10,000 inhabitants.
However, within rare diseases the hemophilia is one of the most frequent. It is currently estimated that It affects one in every 10,000 newborns in our country. It is also divided into several classes but type A is the most frequent and represents between 80 and 85 percent of the total population of people with this disease.
To conclude, Minerva Cruz added: “Being able to count on adequate and approved care and treatment for all people with hemophilia who do not have social security is a great advance that will greatly benefit them. Now it’s up to the medical community and health institutions, including social security, to adopt it. And for us to know and spread it so that this protocol is the standard of care and health care for people living with hemophilia in Mexico.”