Lukas Caldwell has more than 2 million followers on his Tik Tok account.
Lukas Caldwell’s Instagram has more than 35,000 followers.
Lukas Caldwell is an 18-year-old young man who has been diagnosed with Parry-Romberg syndrome since he was 7 years old, for which he has become one of the most famous content creators on the Tik Tok network.
Lukas Caldwell was born on January 12, 2004, in Nebraska, United States, he was one of two twin brothers. In an interview in which he appears, Lukas Caldwell since he was 7 years old has struggled to feel “normal” since he was diagnosed with Parry-Romberg syndrome.
This disease causes the skin and soft tissues on one side of the face to progressively deteriorate. Which means that Lukas is less and less identical to his twin brother, Ben, who does not have the disease.
Lukas says he “suffered with his self-confidence”, but the remarkable sibling relationship brought him solace as Ben has been his “biggest support”. To the surprise of his classmates at school, Lukas began posting disease awareness videos of him on his Tik Tok account.
@lukas.caldwell With or without the mask? #fyp #FallAesthetic #symmetrical #mask #stitch #pumpkinseason ♬ Yadiggg – Krishna 🦋
What is Lukas Caldwell’s Parry-Romberg Syndrome?
According to the National Institute of Neurological Disorders and Stroke (NINDS), Parry-Romberg syndrome is a rare disorder characterized by slowly progressive deterioration of the skin and soft tissues of one half of the face (usually on the left side.
It is more common in women than in men. Initial facial changes generally involve the tissues above the upper jaw or between the nose and the upper corner of the lip, later progressing to the corner of the mouth, areas around the eye, forehead, ear, and neck.
According to the NINDS, Parry-Romberg syndrome is also accompanied by neurological abnormalities including seizures and episodes of severe facial pain. The onset of the disease usually begins between 5 and 15 years of age. The progression of the atrophy usually lasts from 2 to 10 years and then the process seems to enter a stable phase.
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