Through social networks, the parents of a minor patient publish on TikTok all the care they should take with their baby due to the strange skin disease she suffers from.
According to the information provided by the parents of the underage patient, their daughter named Magnolia, originally from Florida, United States, suffers from the disease known as Laminar Ichthyosis.
What is lamellar ichthyosis?
According to the Orpha.net site, Lamellar ichthyosis (IL) is a keratinization disorder characterized by the presence of scales throughout the body without significant erythroderma.
According to the MedlinePlus site,Many babies with IL are born with a shiny, waxy layer of skin called a collodion membrane. For this reason, they are known as collodion babies. The membrane is shed after the first 2 weeks of life. The skin under the membrane is scaly and red, resembling the surface of a fish.
When IL occurs, the outer layer of skin called the epidermis cannot protect the body as the normal epidermis would. As a result, a baby with IL may have the following problems:
- Difficulty feeding
- fluid loss
- Loss of balance of minerals in the body
- Respiratory problems
- unstable body temperature
- Systemic infections on the skin or body
What are the causes of ichthyosis?
Changes in one or more genes cause all types of hereditary ichthyosis. Genes carry the information that determines which characteristics are passed on by parents. We have two copies of each gene, one from our father and one from our mother.
You can inherit this changed gene from one or both parents, or the gene may stop working properly on its own. Some people get ichthyosis because they have another medical condition or experience a side effect from a medication.
@theichthyosisprincesses My sweet Magnolia 💕 #fyp #foryourpage #foryoupage #cracker #purple #baby #babiesoftiktok #ichthyosis #ichthyosisawareness #magnolia ♬ you mean the whole wide world to me – christina perri
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