The General Health Council published less than a year ago the update of the Technical Protocol for Hemophilia Care. For the first time, treatments for adults are included, which is a step towards universal coverage.
This is great news for all people with this condition, since “it represents a significant change for the course of their lives,” as expressed by Minerva Cruz, president of the Hemophilia Federation of the Mexican Republic AC
The Federation of Hemophilia has a registry of 5,800 people
In the country, the hemophilia federation It has a registry of 5,800 people with the condition and 6,300 if other coagulopathies are included. However, this figure should be counted by two, due to the number of carriers, although only 1,800 have been registered so far.
This new protocol includes adults. Although something very important that is also addressed is symptomatic carriers; that is, the mothers of the patients, they are the carriers of the genetics so that the male children develop the disease.
The carriers were previously invisible to the health system
Until before these adjustments, the carriers were completely invisible to the health system, any procedure they required was not linked in any way to the hemophilia disease, nor to the system… with this we are overcoming great barriers and we appear on the map”, they have expressed from the Federation.
The attention protocol brings several very important updates and the important thing is that it be carried out in each institution and enforced, since there is no date on when this order will be executed, how it will be executed and how the budget for this purpose will arrive.
Patients with hemophilia require prophylactic and multidisciplinary treatment so that they can have a better quality of life. Currently, many institutions have clinics for the care of the disease and have the treatment, but this is not for everyone, there are still many patients who do not have a treatment plan that definitely changes the life of a patient drastically.